alatefeline: Painting of a cat asleep on a book. (Default)
[personal profile] alatefeline
Complainy cat is complaining in more detail. Yay?

Content Warning: comparatively less-sick person complaining about being sick and in pain; food, food problems; unpleasant medical details and symptoms; self-directed snark; internaliazed ableism and assorted brainweasels.


So I decided I should transfer to my computer, from my brain, the running list of 'yes', 'no,' 'HELL no', and 'maybe' foods/consumables since this digestive/allergy/joint-pain thing reached its current state.

I made lists. They are long. For your perusal, if you like, I present: 'Not A Food'. At the bottom is part of another list I started, the freaking reasons I know some of these are not a food. And I looked at it all and I was like 'holy hell have I really eaten THAT MANY things that MADE ME SICK in the last couple of months?' And yes, I have. While trying to NOT eat things that make me sick, but for some of 'em, that's the only easy way to TELL. I thought potato chips would be fine; they were not fine.

And also my brain is trying to gaslight me. I was thinking 'well as long as I stay away from gluten it's probably fine, this is only like a four or even a three, that's just normal everyday pain' and then I did a double take and reminded myself that two years ago I could eat basically everything on the lists, didn't even HAVE joint pain issues except for the neck and shoulder, and had significantly more energy without dragging myself through things. I thought I'd stomped most of my self-directed internalized ableism but apparently only for the headstuffs because the bodystuff is bringing up self-defeating minimizing cultural imprints I didn't know I had like WHOA.

These lists are works in progress, incomplete, and really only mainly for my own reference and probably some doctors. (YES I will be going to the doctorses. Progress updates by the end I June I promise.) Presented mostly to open the door for sympathy, random helpful trivia, 'me too' moments, or whatever reaction y'all feel like having; I trust you folks.

First List: Food

Definitely Food
* mild fruit, such as: honeydew melon, watermelon
some mild cooked vegetables: carrots
unsweetened gf/soyfree green smoothie (CoGo Greens)
plain rice crackers
plain unsalted cashews


Probably Food
plain almond milk
sunflower seed butter
most nuts and seeds, whether plain, simply roasted/salted, or as ingredients: cashews, slivered almonds, hazelnuts, pistachios, sunflower seeds, pumpkin seeds, sesame seeds, flaxseed
more nuts: pecans, macadamias, peanuts, groundnuts, pine nuts,
most fresh fruit: apples, bananas, blackberries, raspberries, cherries, mango, peach, rambutan, blueberries,
more fruit: apricot, plum, haws, cantaloupe,
some dried fruit: figs, very small serving prunes, mango, dates, apricots
most vegetables: zucchini, squash, peas, carrots, green beans,
most greens: spinach, lettuce, kale, chard, beet greens
sweet potato
mushrooms
gf fig bars; gf corn-and-ancient-grain cereal; Petunia’s gf zucchini bread, protein bars, muffins, etc; gf sweet-potato-starch noodles; gf bread, especially lightly toasted
cashew-carrot-ginger soup-in-a-box
rice: plain brown rice, plain white rice, rice crackers
avocado smash
plain or garlic-lemon hummus; cooked chickpeas
most coconut stuff: coconut water, coconut-based replacements for dairy, unsweetened dry flaked coconut
some edible flowers: violets
plain hard-boiled egg
almond butter
coffee diluted with water or with almond milk
plain baked potato
onion, garlic
most herbal teas
neighborhood coffee shop order: side green salad, no dressing, add fried egg and avocado


Maybe Not A Food
acid/bitter fruits: oranges, tangerines, cranberry, tamarind,
bell pepper
plain fresh edamame (soybeans)
scrambled eggs esp. seasoned
mustard greens, dandelion greens, other bitter/spicy greens
black coffee, sweetened coffee
some spices
prunes (except when intended to help with constipation)
1 gf alcoholic beverage with lots of water
plain black tea
corn: frozen or fresh kernels; plain cornflakes; cornmeal mush
nearby shop’s sandwiches even on gf bread - too complicated :(
simple olive oil / cider vinegar dressing for salad or slaw

Probably Not A Food
soy protein as an added ingredient
small amounts of dairy: butter, coffee with a very little milk
asparagus
red cabbage
almost any salad dressing
very sugary foods without fat/protein/complex carbohydrates
most potato chips, most tortilla chips
most nightshades: almost anything based on tomato, eggplant, pepper, also some potato stuff
soy milk
almond milk smoothies containing soy, added sugar& flavoring
peanut butter
tomato sauce, ick
small amounts of olive oil, flaxseed oil
smoked salmon
black beans if not REALLY well rinsed
malt as a flavoring or key ingredient
herbal teas with weird added flavorings
sweet tea
black olives, even the good kind

Definitely Not A Food
gluten-y wheat-y goodness: breads, pastries, crackers, cereals, cakes, bagels, sandwiches, cookies, pizza…
large amounts of dairy/lactose: milk, cream, ice cream, cheese, cheese topping on eggs, pizza…
protein shakes with whey and soy
sneaky gluten: soy sauce, tamari flavor rice crackers, …
soy sauce
eggplant, fresh dark colored bell peppers, fresh dark colored tomatoes, chili peppers, baba ghanouj
inulin as an added ingredient
smoked paprika /
paprika, ever
tomato sauce in any noticeable quantities
rice vinegar
meat*** (with rare exceptions now probably nonexistent)
tulsi aka holy basil

Second List: Reactions

Clusters of Symptoms
(ETA: These are things that happen sometimes. Not continuously, thank gods. I've been learning the different varieties of not good reaction well enough to categorize them, which is a sad thought, but also a useful one. I've had good days, too, especially since starting the gf experiment.)

‘evil gluten major reaction’ - has happened repeatedly - too tired to stand up long, too weak to walk far, serious joint pain, significant abdominal pain, some muscle pain, buzzing sensation in all extremities, puffy bloated feeling, hands and feet go numb easily, blurred vision, headache, despair and intrusive thoughts, unable to want anything except rest, unable to concentrate, effectively unable to eat; minimum 3 hours
‘major hives’ - only once, but a scary once
‘typical reaction’ - abdominal pain, joint pain, possible muscle pain / headache, constipation and/or odd-smelling soft stools
‘icky tired downer’ - often
‘headache from hell’ - sometimes
‘still exhausted and ouchy’ / ‘persistent brain fog’ - for weeks
‘vomiting sick’ - just the other day, otherwise not often
‘sugar high’ - and not the fun kind, anytime I eat sweets on their own lately
‘oh fuck that stings and itches’ - when I put some things in my mouth
‘stomach pain AGAIN?’ - occasionally and unexpectedly
‘my hands are numb why’ - generally because I did something
‘dunwanna’ - often

Date: 16 Jun 2017 02:35 (UTC)
leecetheartist: A lime green dragon head, with twin horns, and red trim. Very gentle looking, with a couple spirals of smoke from nose. (Default)
From: [personal profile] leecetheartist
Do you have coeliac disease? (My husband does) We know all about Ninja gluten.

Date: 16 Jun 2017 02:46 (UTC)
leecetheartist: A lime green dragon head, with twin horns, and red trim. Very gentle looking, with a couple spirals of smoke from nose. (Default)
From: [personal profile] leecetheartist
My husband had the same thing happen - sudden onset about 8 years ago. You know what the sneakiest one is? Kissing if your partner has been chowing down on gluten.
Not too much of a problem as I did the whole solidarity thing and neither of us eat gluten now.

Also, watch your medications and supplements, it sneaks in there too, can you believe it?

If you get sore in the corners of your mouth you're not getting enough B vitamins, something I noticed and had to readjust for by taking supplements.

The good news is that if you are coeliac you will feel so much better.

Date: 16 Jun 2017 03:29 (UTC)
leecetheartist: A lime green dragon head, with twin horns, and red trim. Very gentle looking, with a couple spirals of smoke from nose. (Default)
From: [personal profile] leecetheartist
Anytime, we're here for you.

Date: 16 Jun 2017 02:52 (UTC)
alexseanchai: Blue and purple lightning (Default)
From: [personal profile] alexseanchai
comparatively less-sick person

*looks at symptoms list*

Compared to whom? Because I gotta say, if you and me are having a contest here, you're winning.

Date: 16 Jun 2017 06:29 (UTC)
alexseanchai: Blue and purple lightning (Default)
From: [personal profile] alexseanchai
*nod* that's...better than one of the alternatives, anyway.

Date: 16 Jun 2017 03:16 (UTC)
vladdraculea: Rainbow Autistic Pride lemniscate over the black, grey, white, and purple stripes of the Asexuality Pride flag (Default)
From: [personal profile] vladdraculea
Relatable post is *highly* relatable.

— Ben & Vlad

Date: 16 Jun 2017 04:43 (UTC)
mdlbear: the positively imaginary half of a cubic mandelbrot set (Default)
From: [personal profile] mdlbear
Ugh! We finally determined that I don't have coeliac or any other form of gluten intolerance, but along the way Colleen and I picked up a huge amount of info on ways of avoiding the stuff. Pasta Joy brown rice pasta is the best GF pasta I've found.

Damned if I know whether what I have is an allergy (tested negative to most of the common ones), a cold that simply will not go away, or something else, but I miss being able to breathe sometimes.

Bodies are horribly inconvenient things, and are the best possible refutation of "Intelligent Design." I mean, really!

Date: 16 Jun 2017 07:56 (UTC)
desertroot: Agave - a smooth and spiny desert plant with wildflowers growing in front (Default)
From: [personal profile] desertroot
*headbutts gently*
Sympathies...

" I thought I'd stomped most of my self-directed internalized ableism but apparently only for the headstuffs because the bodystuff is bringing up self-defeating minimizing cultural imprints I didn't know I had like WHOA."

Oh, gods, yes, this stuff can be so sneaky... We've been dealing with similar stuff ourselves recently and this whole "it can't be that bad, I must be making it up" stuff can really get to you. I think it's tied into the idea that real disabled people are not just people that you might run into... And all the bs over weedng out "fakers". It can be hard to trust ourselves.

Anyway, all the sympathies.

*more nuzzles*

(and here is where we have been blogging about similar things http://soilrockslove.tumblr.com/tagged/Alle-tanzen-mit-der-Tod )

Date: 16 Jun 2017 09:11 (UTC)
gingicat: drawing of me based on wedding photo (Default)
From: [personal profile] gingicat
Other dried stone fruits can take the place of prunes.

However, a better *maintenance* medication for constipation is Miralax. Rather than forcing your muscles to move against hard dried-up stuff, it lubricates the walls of your colon. I use it during Passover. The Child Who Eats Nothing has been taking it daily for his entire life.

Date: 16 Jun 2017 10:42 (UTC)
siliconshaman: black cat against the moon (Default)
From: [personal profile] siliconshaman
Check ingredients carefully, a lot of products sneak garlic powder into things and since garlic and others of the allum family seem to be a no-no for you... sometimes it's just listed as 'natural flavourings'.

Yeah, my daughter has a list about the same length as yours, with significant overlap.

Date: 16 Jun 2017 12:50 (UTC)
we_are_spc: (Default)
From: [personal profile] we_are_spc
Awh dqamn cat. :( I sorry ya so damn bad-feelin', even if it ain't constant an' shit.

I hope ya get this shit sorted out. <3

-Jay~

Date: 16 Jun 2017 13:12 (UTC)
redbird: apricot (apricot)
From: [personal profile] redbird
As other people have noted, watch out for "natural flavorings." Also, a lot of things turn out to have lurking soy or dairy, or mushrooms (which one of my partners is allergic to).

On the positive side, buckwheat (soba, kasha, "sarasin" if you find yourself in a Francophone area) is a gluten-free grain that might be worth trying. Soba are the Japanese buckwheat noodles, kasha is eastern European buckwheat groats, but if you see kasha varnishkes on a menu somewhere beware, that includes wheat-based bowtie noodles. Buckwheat crepes in a restaurant almost certainly contain dairy, which I don't see listed here either as "food" or "not food," and non-dairy pancakes most likely contain soy milk, though it might be nut milk.

You probably know this already, but reading ingredients is going to be an ongoing problem, because companies change the recipes, and don't always put a "new and improved" or "now better!" warnings on the package.

Date: 17 Jun 2017 18:53 (UTC)
redbird: closeup of me drinking tea (Default)
From: [personal profile] redbird
Yes, it sucks. Part of the trouble with being sick, like being poor, is how much time it takes up.

Date: 16 Jun 2017 14:22 (UTC)
redsixwing: Red-winged angel staring at a distant star. (Default)
From: [personal profile] redsixwing
Plooh. I note that the longer part of the list is in the "nope" side.

Glad you're seeing someone; I hope they're able to help.

Date: 16 Jun 2017 20:52 (UTC)
kyleri: (Default)
From: [personal profile] kyleri
bodies nooooooooooooo

your 'definitely food' list is distressingly short

that is not fun

Date: 17 Jun 2017 02:08 (UTC)
kyleri: (Default)
From: [personal profile] kyleri
*makes magic sadcat food that is tasiest ever & makes nobody sick*

all for you

Date: 17 Jun 2017 15:58 (UTC)
lilysea: Tree hugger (Tree hugger)
From: [personal profile] lilysea
Aaaargh!

Sympathies.

I have food intolerances and food allergies and argh.

Especially because I can't cook anymore, because fatigue.

And my allergy is cinnamon, and so many ingredient labels just say "herbs and spices" - not helpful, people! Not when one dose of cinnamon = 8 weeks of red itchy painful skin!

I have foods that I MUST NOT EAT, like cinnamon and dairy and gluten

and foods that I should not eat - tomatoes, potatoes, corn - that I often end up eating because they are the only foods available that don't contain MUST NOT EATS.

And I was reminded of a very illuminating blog post I once read about the habit of abled people trying to relate by making comparisons to disabled people's experiences that are like comparing a hangnail to a broken arm, to which said disabled person is expected to respond politely.

I've had this done to me ALL TOO OFTEN. And it makes me want to BITE the person who is doing it.

I'd be interested in a link to the post, if it's not friends-locked?

Date: 19 Jun 2017 05:51 (UTC)
jewelfox: A portrait of a foxgryphon with a beak, black fur, magenta hair, fox ears, and a neckband with a large jewel on it. (Default)
From: [personal profile] jewelfox
Can I point [personal profile] chozomind at this entry? They have a lot of experience with realizing all kinds of stuff affects them very badly. >//>

It's a skill that I need to learn too.

Date: 27 Jun 2017 23:55 (UTC)
kk1raven: (Default)
From: [personal profile] kk1raven
It sounds like you're getting a better handle on what is and isn't food for you. I wish you luck in being able to successfully avoid the bad stuff. My list of non-foods is relatively small yet I sometimes go out to eat and find nothing on the menu that I can eat as it is described. Lunch today was one of those times. Fortunately, I didn't have any problems getting them to leave the cheese off a sandwich for me. Your longer list must make it much harder for you.

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alatefeline: Painting of a cat asleep on a book. (Default)
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